Engaging in community research and impact measurement relevant to Ummeed’s work.
Participation in home, school, and community activities is an important outcome in the rehabilitation of children and youth with disabilities. Participation and Environment Measure Children and Youth (PEM-CY) is a tool developed by CanChild Center for childhood disability research, McMaster University in Canada) to measure participation in children between 5 to 17 years of age, and the effect of environmental factors on it.
Over the last 1.5-2 years, the Ummeed team has been working on adapting the PEM-CY culturally and evaluating it for use in the Indian context. The process and results of this work were recently published in The International Journal of Environmental Research and Public Health. The article also documents, for the first time in India, a clear difference between the levels of participation of children with and without disabilities in the home, school, and community.
Ummeed is now considering ways of using the Indian PEM-CY to measure outcomes of its interventions towards supporting children and families. This is also a tool that can be used by other organizations in the disability space to design interventions and measure their outcomes at an individual and a programmatic level. Since February 2021, Ummeed has also implemented a new training program - Pathways and Resources for Engagement and Participation (PREP) - with the objective of increasing awareness and understanding around the importance of participation-based outcomes and support adoption of the PEM-CY tool.
Funded by: National Institute of Health, USA
In partnership with: Yale University and University of Ankara
Objective: Develop a tool that can be used by community health workers in low and middle income countries to monitor early childhood development.
Methodology: The study was conducted in 3 phases over 5 years, and data was collected from over 20,000 children from 4 low and middle income countries.
The following factors may preclude the use of standard assessment instruments like questionnaires and checklists.
The IGMCD is a novel tool with the ultimate goal of facilitating developmental monitoring and the early detection of developmental difficulties in children between the ages of 0-42 months in Low and Middle Income (LAMI) countries. It consists of an open-ended, culturally neutral interview with a caregiver centered around the strengths of the child in his or her specific context.
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